Sunday, March 16, 2008
here it is
Well, as soon as church got out I decided to call the pager to the M/S office since they are obviously not open on the weekends. I called it because I know I am getting worse. The PHYSICAL strength is being sucked out of the right side of my body, and I just knew I needed to get it looked at. It is so hard for me to type because the fingers on my right hand just respond so slowly. But I just love this darn BLOG and all the people who read it so I will keep posting even if I have to type with my nose. :-)
Gail (lady who called back from M/S Center) told me I needed to go to the Emergency Room and get checked out ASAP. So that is what I did. I took my MRI from 2-28-08 and headed off. They looked me over and called Dr. Kolar who is the main guy at the M/S Center. He said that I should get another MRI done and then check back. Well, after a lot of waiting and trying to get me to put on this silly patient gown, I went and spent about an hour in the MRI. Dang every time I forget how loud those things are. The radiologist "Mary" had to be called in because it was a Sunday and she said she was headed to her lake cottage to spend the last bit of time with her in-laws..she actually thanked me. ;-) She was really cool and let me sit in the room with her and explained a bit to me about the whole procedure. I saw my Brain up on the screen and said to her, "there is new lesions isn't there?" She can't tell me by law, but I knew it was a yes. So I went back to the ER area, and I think the doc and nurses were surprised by my up beat attitude. Instead of watching T.V. in my room, I wanted to talk and hang out with them. Well, the doc tells me that there is a brand new lesion in my left temporal lobe. One that has popped up in the short amount of time since my last MRI. He was shocked because I am only 21 years old. My speech is starting to be affected as well. Here is the reality of it all folks. I have been praying that God increase my faith. So that I may trust him in all things, through all things, and above all things. If it means rising above my disease, SO BE IT! I should be so lucky! This is my honest mentality. Tomorrow I go back to the M/S Center with my dad to start the TYSABRI. They didn't start me on the I.V. solu-medrol (steriods) because it would have interfered with getting the Tysabri started.
I went to collateral tonight when it would have been easier to sleep, trust me I have lost a lot of energy lately. BUT, I was so blessed. I love going through Pauls letters in a large group. I love getting input from all different people. The worship time was amazing as well. We sang old hymns, and sometimes I just need to get a little bit old school. HE HE. Now, I must pass out.