Tuesday, March 18, 2008
Well I am getting less and less energy and I was wrong yesterday about my weakness peaking. I believe I am weaker yet. I can just barley hold my hand in2 a fist. I walk with a little bit of a limp, but it's all good. I think I am getting really good @ taking everything in strides. My right hand is FREEZING! That isn't a complaint, just informing of my reality.
I went to see my family doc. Mark Sauder, the best doctor in Indiana today. It was really good to see him & he put me at peace with the whole Tysabri bit. He explained that it would be very foolish for me to be too picky. Even though the long terms are unknown I have a very debilitating disease & I am young. If it works, then I need to go with it.When I saw Dr. Sauder he wanted to run some tests. Ya see I had some high blood pressure & something other than the obvious seemed wrong. He's on it though & he is also going to work hand and hand with the M/S center 2 get me on the TYSABRI. There was this lady, maybe late 20's who brought in her baby girl (Autumn Rose) b/c she had maybe the ATV(or something) virus. The baby was SOOOO cute & loved stairing @ me. The mom was pissed when she came into the hospital. She had piercings & a shirt with the middle finger in the back. She made it sound like the father of her 2 babies was a control freak. I could tell it felt good for her to just talk about her baby & life. When she left i prayed 4 her & her baby. I had to take a pee sample...it took FOREVER!!! I made it home though & i am learning how to work /w the hands available to me. I LOVE MY JESUS!