Dr. Lee, why does it have to bee? I had Dr. Heidi Lee today at the Indiana Center for M/S. She was a small Asian woman, and my mom said, “felt kind of familiar didn’t it?” HA! I was just like, yea mom, she was Chinese….. Silly mother. So, they told me that there were several new lesions, and that the new lesions were showing activity. They were not happy to hear about my black out episode. They think the M/S might be causing small strokes. She explained it like this; since I bit my tongue when I passed out, that shows that it was not a heart or oxygen issue. She said that you won’t usually bite your tongue when it has something to do with not enough oxygen getting to your brain. However, if you have a “mini stroke” it is common for the tongue to be bit. On Tuesday, I am scheduled to have an electroencephalogram (EEG). I just hope that they find that my M/S is NOT causing any kind of stroke activity. If they find this is true, they will put me on more medications, and there won't really be any way for me to get out of it.
Dr. Lee, and Dr. Kolar both think that I should try Tysabri. A Monotherapy therapy (once a month I.V. treatment). Tysabri was taken off the “shelves” by the FDA because it had some issues…. For one reason or another, in the middle of 2006, it was reintroduced for treatment in M/S. The warning label reads this LOUD AND CLEAR!
TYSABRI® increases the risk of progressive multifocal leukoencephalopathy (PML), an opportunistic viral infection of the brain that usually leads to death or severe disability. Although the cases of PML were limited to patients with recent or concomitant exposure to immunomodulators or immunosuppressants, there were too few cases to rule out the possibility that PML may occur with TYSABRI® monotherapy.
In the immortal words of Homer Simpson, "DO'OH!"
~quick Q & A~ Asked and answered by myself.
Q: Are you worried about your current health?
A: No, I really do believe that everything happens for a greater reason. A "divine will" is something I have to accept and feel comfortable in.
Q: How are you feeling on a day to day basis?
A: I feel awesome, any symptoms I may have are very liveable. I have energy, and can't wait to start working again.
Q: Is the way you feel, a good way to judge the current state of your M/S?
A: No, there is all kinds of neurological activity going on in my brain, and possibly spinal cord that I would have never known about.
Q: Do the new lesions give a good idea about the current state of your M/S?
A: No, the new lesions just tell me that the Avonex is not doing it's job. It is now time to try a new method.
Q: Does it suprise you that the Avonex is not doing what it "should" be doing?
A: No, Avonex is an interferon; traditional care therapy for M/S, and I have known that these are not successful in treating my disease, that's why I felt so strongly about giving China a try.
Q: Are you possibly the sexiest man in America?
A: I don't like to flaunt, but yes, I think this is probably true.
In the evening, Amanda and I had out devotion...which lead to be quite interesting. Then, when I was in Amanda's car in my driveway, My friend Sara Haines calls me! WASSUP Missy from the East? We chatted for an hour and a half, and then I passed out on the couch for a bit. MY DAY HAS ENDED.